More than 500,000 people are living with tardive movement disorders in the United States. The National Organization for Tardive Dyskinesia works to give these people a voice, and a platform.
Classic tardive dyskinesia, TD, involves involuntary, repetitive movements of the face, limbs, torso or other body parts. The condition stems from treatment using dopamine receptor-blocking agents over an extended period of time.
The National Organization for Tardive Dyskinesia is the first and only nonprofit organization in the United States dedicated to those living with the disease, which can be debilitating. It has already made an impact, giving hope and help to those with TD and other tardive syndromes.
“I was motivated by the severity of people’s stories that I read about; they were so disabling I felt there needed to be an organization for TD,” said Kathleen A. Shea, founder and president of The National Organization for Tardive Dyskinesia.
The Movement Disorders Policy Coalition and the National Organization for Tardive Dyskinesia share a joint commitment to raising national awareness and expanding public outreach. To learn more about the National Organization for Tardive Dyskinesia advocacy efforts and membership, visit tdhelp.org.