The Dystonia Medical Research Foundation provides support, education and empowerment to the 250,000 Americans living with dystonia.
Dystonia is neurological disorder that causes excessive, involuntary, and sometimes painful, muscle contractions. It’s also the third most common movement disorder behind essential tremor and Parkinson's disease.
Founded in 1976, the Dystonia Medical Research Foundation aims to find a cure for this movement disorder community.
Individuals living with all forms of dystonia, friends and families, donors and health care professionals comprise the foundation. Together, they work to increase awareness and education, and help support the needs and well being of affected individuals.
The Dystonia Medical Research Foundation is more than a mission of advocacy. It’s a way of life. The group understands what it’s like for people living with dystonia, because 100% of the Board of Directors is personally impacted by dystonia—either themselves or a loved one is diagnosed.
At the foundation we believe in, “Showing up every day to make the next day better,” said Art Kessler, president of the Dystonia Medical Research Foundation.
The Movement Disorders Policy Coalition couldn’t agree more, and is proud to stand alongside the Dystonia Medical Research Foundation to do their difficult, yet crucial, work of finding a cure for dystonia.