The Movement Disorders Policy Coalition is pleased to highlight the National Ataxia Foundation this month. A valued coalition partner, NAF is dedicated to improving the lives of those with Ataxia, a movement disorder caused by problems in the brain.
“Patients living with Ataxia face new challenges each day. We work to provide them with the resources and community they need to overcome these challenges,” said Lori Shogren, Program and Services Director. “We are proud to partner with the Movement Disorders Policy Coalition to spread awareness and support patients with Ataxia and other movement disorders.”
The foundation’s vision of a world without Ataxia drives its advocacy and fundraising efforts to increase research for treatment and, ultimately, a cure. Their Accelerate! program is a $1 million annual fund to boost their advocacy efforts. This program provides resources to host over 65 support groups, advance legislation, educate the community on genetic testing and raise awareness across the country.
Education is another priority for NAF, which provides disease education resources such as webinars, brochures, fact sheets and books. Generations, the foundation’s annual magazine, features the experiences of Ataxia patients and families.