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TD Awareness Week

Movement Disorders Policy Coalition

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TD Awareness Week
AfPA Digital
January 17, 2025
Blog

New York Moves on Movement Disorders

AfPA Digital
January 17, 2025
Blog
New York Moves on Movement Disorders

Patients and advocates alike are praising New York Governor Kathy Hochul for signing into law legislation aimed at improving awareness of medication-induced movement disorders.  

Source: https://healthpolicytoday.org/2025/01/17/new-york-moves-on-movement-disorders/

AfPA Digital
May 15, 2024
Blog

ICER Doubles Down on Flawed Metrics

AfPA Digital
May 15, 2024
Blog
ICER Doubles Down on Flawed Metrics

How much is a life worth? It’s not an easy question, but that doesn’t stop the Institute for Clinical and Economic Review from trying to calculate an answer – even if it means using biased tools.  

 

Source: https://healthpolicytoday.org/2024/05/15/icer-doubles-down-on-flawed-metrics/

AfPA Digital
March 28, 2024
Blog

Who’s At Risk for Tardive Dyskinesia?

AfPA Digital
March 28, 2024
Blog
Who’s At Risk for Tardive Dyskinesia?

Medications for severe illness can be lifesaving, but they also may present side effects that are a challenge to manage. Tardive dyskinesia, for example, is an involuntary movement disorder related to long-term use of medications like antipsychotics.

Source: https://healthpolicytoday.org/2024/03/28/whos-at-risk-for-tardive-dyskinesia/

AfPA Digital
February 5, 2024

Parkinson's Disease: Improving Treatment While Working Toward a Cure

AfPA Digital
February 5, 2024

More than 1 million people across the United States live with Parkinson’s disease.

Read Policy Paper >

Source: https://static1.squarespace.com/static/5980b29b3e00be44e7307b1e/t/65ba78b8fd4bcc74362b31d7/1706719424467/MDPC_Improving_Access_While_Working_Toward_a_Cure_February+2024.pdf

AfPA Digital
November 20, 2023
Blog

Family Caregivers, the Invisible Heroes

AfPA Digital
November 20, 2023
Blog
Family Caregivers, the Invisible Heroes

Some people who receive a life-changing medical diagnosis are fortunate enough to have a loved one to care for them at home. This November, National Family Caregivers Month honors those dedicated women and men across the country.

Source: https://healthpolicytoday.org/2023/11/17/family-caregivers-the-invisible-heroes/

AfPA Digital
November 9, 2023
Member Feature

Parkinson Association of Northern California

AfPA Digital
November 9, 2023
Member Feature

The Parkinson Association of Northern California, or PANC, is a nonprofit dedicated to uplifting regional individuals whose lives are affected by Parkinson's disease. Founded in 1996, PANC has grown significantly in its capacity to to provide resources and support for Parkinson’s patients and their loved ones. 

AfPA Digital
November 1, 2023

Movement Disorders: Impact and Access to Treatment

AfPA Digital
November 1, 2023

Click below to view pdf.

AfPA Digital
October 2, 2023

Movement Disorders & Mental Illness

AfPA Digital
October 2, 2023

Click below to view the PDF.

Source: https://static1.squarespace.com/static/5980b29b3e00be44e7307b1e/t/5d9b4093d7ae0f43a4ef82f5/1570455700785/MDPC_Movement+Disorders+%26+Mental+Illness_Oct+2019.pdf

AfPA Digital
August 7, 2023

Comprehensive Treatment for Tardive Dyskinesia

AfPA Digital
August 7, 2023

Involuntary facial expressions. Difficulty eating, speaking and swallowing. Embarassment. These are common experiences of people who live with a disorder of the nervous system called tardive dyskinesia.

Read One-Pager >

Source: https://allianceforpatientaccess.org/wp-content/uploads/2023/07/AFPA_NDWG_TDTreatmentOne-Pager_July-2023.pdf

AfPA Digital
May 11, 2023
Member Feature

Help 4 HD

AfPA Digital
May 11, 2023
Member Feature

Help 4 HD, established in 2013, seeks to educate people about Huntington's disease and Juvenile Huntington's disease. Huntington’s disease is a genetic and ultimately fatal brain disorder that affects movement, thought, and behavior. More than 30,000 Americans are diagnosed and over 250,000 are at risk.  

AfPA Digital
April 18, 2023
Blog

Fight Continues to Expand Federal Benefits for Huntington's Disease

AfPA Digital
April 18, 2023
Blog
Fight Continues to Expand Federal Benefits for Huntington's Disease

The iconic American folk balladeer and social activist Woody Guthrie spent the last two decades of his life in a struggle against Huntington’s disease.

Source: https://healthpolicytoday.org/2023/04/18/fight-continues-to-expand-federal-benefits-for-huntingtons-disease/

AfPA Digital
April 5, 2023

Treatment for Patients with Parkinson's Disease

AfPA Digital
April 5, 2023

Daily life can be difficult for people with Parkinson’s, a relentlessly progressive neurodegenerative disease that affects both movement and cognition.

Read One-Pager >

Source: https://admin.allianceforpatientaccess.org/wp-content/uploads/2022/11/AfPA_NeuroWG_Parkinsons_One-Pager_Nov2022.pdf

AfPA Digital
April 5, 2023

Patient-Centered Care for Parkinson's Disease Video

AfPA Digital
April 5, 2023

Click below to watch video.

Source: https://youtu.be/agzmMaw-JNc

AfPA Digital
March 13, 2023

Patient-Centered Care for Parkinson's Disease

AfPA Digital
March 13, 2023

Click below to view PDF version.

Source: https://admin.allianceforpatientaccess.org/wp-content/uploads/2022/03/MDPC-Patient-CenteredCareforParkinsonsPatients_Infographic_Mar-2022.pdf

AfPA Digital
March 13, 2023

Step Therapy & Neurological Care

AfPA Digital
March 13, 2023

Click below to view the PDF version.

Source: https://admin.allianceforpatientaccess.org/wp-content/uploads/2020/06/Neuro-WG_Step-Therapy-Neurological-Care_June-2020.pdf

AfPA Digital
March 13, 2023

Non-Medical Switching & Neurological Care

AfPA Digital
March 13, 2023

Click below to view PDF version.

Source: https://static1.squarespace.com/static/5980b29b3e00be44e7307b1e/t/5f4e54430985a86d0a67c9f7/1598968901268/Neuro-WO_Non_Medical_Switching_Neurological_Care_July-2020.pdf

AfPA Digital
March 6, 2023

Comprehensive Treatment for Essential Tremor

AfPA Digital
March 6, 2023

Spilt beverages. Dropped food. Difficulty dressing. Embarrassment. These are common experiences of people who live with a condition called essential tremor.

Read One-Pager >

AfPA Digital
January 9, 2023
Blog

Parkinson’s Cases Have Been Underestimated by 50%

AfPA Digital
January 9, 2023
Blog
Parkinson’s Cases Have Been Underestimated by 50%

The incidence of Parkinson’s disease among older Americans has been underestimated for years – by a stunning 50%. That pushes the number of new Parkinson’s diagnoses up to 90,000 annually, according to a new study.

Read more.

Source: https://healthpolicytoday.org/2023/01/09/parkinsons-cases-have-been-underestimated-by-50/

AfPA Digital
November 9, 2022
Member Feature

Aimed Alliance

AfPA Digital
November 9, 2022
Member Feature

The Movement Disorders Policy Coalition is pleased to partner with Aimed Alliance as this month’s member feature. Aimed Alliance is a non-profit health policy organization that is staffed by a team of attorneys, which allows them to conduct detailed analysis and research on insurer practices and their compliance with state and federal laws.

AfPA Digital
October 21, 2022
Member Feature

National Alliance on Mental Illness

AfPA Digital
October 21, 2022
Member Feature

The Movement Disorders Policy Coalition is excited to highlight the National Alliance on Mental Illness, or NAMI. NAMI is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness.

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